LDNBS Action Network Videos

Welcome | LDNBS Action Network

Leukodystrophy NBS Family Experiences

LDNBS Action Network Bootcamp with EveryLife

Newborn Screening Advisory Boards | LDNBS Facebook Live

Leukodystrophy Videos

How the Kirbo and Ellis Family Navigate Krabbe Disease

What is Krabbe Disease? (Judson's Legacy)

Krabbe: Transplant Alone is Not a Cure

Gene Therapy for Adrenoleukodystrophy

Patient Experience of Gene Therapy for Metachromatic Leukodystrophy

New promise for MLD gene therapy

Krabbe Disease: One parent's journey

Krabbe Disease: Tom's story

Newborn Screening Videos

How to Advocate for Newborn Screening (Forge Biologics Panel Discussion)

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3-Hydroxy-3-Methylglutaric Aciduria
3-Methylcrotonyl-CoA Carboxylase Deficiency
Argininosuccinic Aciduria
Beta-Ketothiolase Deficiency
Biotinidase Deficiency
Carnitine Uptake Defect
Citrullinemia, Type I
Classic Galactosemia
Classic Phenylketonuria
Congenital Adrenal Hyperplasia
Critical Congenital Heart Disease
Cystic Fibrosis
Glutaric Acidemia, Type I
Hearing loss
Hemoglobinopathies
Holocarboxylase Synthetase Deficiency
Homocystinuria
Isovaleric Acidemia
Long-Chain L-3 Hydroxyacyl-CoA Dehydrogenase Deficiency
Maple Syrup Urine Disease
Medium-Chain Acyl-CoA Dehydrogenase Deficiency
Methylmalonic Acidemia (Cobalamin Disorders)
Methylmalonic Acidemia (Methymalonyl-CoA Mutase Deficiency)
Primary Congenital Hypothyroidism
Propionic Acidemia
S, Beta-Thalassemia
S, C Disease
Severe Combined Immunodeficiency
Sickle Cell Anemia
Trifunctional Protein Deficiency
Tyrosinemia, Type I
Very Long-Chain Acyl-CoA Dehydrogenase Deficiency
Adrenoleukodystrophy