Menu

Mission
- About
+
Newborn Screening
- Get Involved
  +
- Add Screening to your State
  - NBS Around the World
  - The Three Pillars of NBS Advocacy
  +
- - Learn more here:
    
    Upcoming Events State Legislation
+
+
Resources
+
Our Projects
+
In the News
- New & Noteworthy
- Relevant Books and Videos
+
Contact
- Join the Action
- FAQs
+

Archive for Term: MLD Books

HomeMLD Books

Harnessing Grief: A Mother’s Quest for Meaning and Miracles by Maria Kefalas

The Leukodystrophy Newborn Screening
Action Network is a coalition of leukodystrophy
patient advocates dedicated to championing
the cause of newborn screening for
leukodystrophies and lysosomal storage
disorders.

We want to build partnerships