Menu

Mission
- About
+
Newborn Screening
- Get Involved
  +
- Add Screening to your State
  - NBS Around the World
  - The 3 Pillars of NBS
  +
- - Learn more here:
    
    Upcoming Events State Legislation
+
+
Resources
+
Our Projects
+
In the News
- Events
- Known Books and Videos
+
Contact
- Join the Action
- FAQs
+

Archive for Term: Leukodystrophy and Gene Therapy

HomeLeukodystrophy and Gene Therapy

Defeating the Doubt: A True Story of Hope

Triumphing Over Tragedy: Overcoming Adversity

The Leukodystrophy Newborn Screening
Action Network is a coalition of leukodystrophy
patient advocates dedicated to championing
the cause of newborn screening for
leukodystrophies and lysosomal storage
disorders.

We want to build partnerships

Mission
About
Your Story
Become an Advocate
In the News
Contact

Screening by State
Research
Support & Care
Get Involved

Subscribe to our Newsletter

Terms of Use
Privacy Statement

This site uses cookies. By continuing to browse the site, you are agreeing to our use of cookies

OK

Learn more here:

Lessons From a Little Star

Motherhood: Plot Twist Paperback

The Adventures of RC Hard Cover

Fixing Genes, Treating Disease

Living with Leukodystrophy

Cracking the Code

Defeating the Doubt: A True Story of Hope

Triumphing Over Tragedy: Overcoming Adversity