Leukodystrophy Awareness Month – and Newborn Screening Awareness Month – is celebrated in September each year.
One way you can help increase awareness of Leukodystrophy is by requesting that your state officially declare September to be Leukodystrophy Awareness Month!
A proclamation is purely ceremonial, but it can be a great way to get the word Leukodystrophy in the minds of stakeholders in your state, get media coverage of your story, and spread awareness on social media!
And, you will usually receive a paper copy of the proclamation to keep:
If you’d like to submit a proclamation request for your state, follow the three simple steps below. Reach out if you need assistance!
Step Three
Let people know about it!
- If your request is granted, post pictures of the proclamation on social media!
- Reach out to local media to tell your story!
- Let us know that it was received by commenting on the spreadsheet or sending us a note!
