Mental Health Support

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Mental Health Support

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Fellow advocates and leukodystrophy families, we are here to support you!  See our list of mental health resources below to get started.  You are also welcome to contact us at any time for further guidance.

We hope to host a newborn screening support group for leukodystrophy families in the future!  Please reach out to info@ldnbs.org for more information.

Dr. Al Freedman

Dr-Al-Freedman

We will provide emotional and psychological support for families impacted by newborn screening so they can have a safe space to discuss their worries and concerns with Family Support Coach, Dr. Al.  He has dedicated 25 years to supporting families impacted by rare, neurological diseases.

    • Experienced counseling Psychologist
    • Dedicated 25 years
    • Safe space to discuss worries

Fill out the short screening form today to connect with Family Support Coach, Dr. Al, and to learn more about the support group.

Learn more about Newborn Screening at:

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