Mental Health Support

Mental Health Support

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Fellow advocates and leukodystrophy families, we are here to support you!  See our list of mental health resources below to get started.  You are also welcome to contact us at any time for further guidance.

We hope to host a newborn screening support group for leukodystrophy families in the future!  Please reach out to info@ldnbs.org for more information.

Dr. Al Freedman

Dr-Al-Freedman

We will provide emotional and psychological support for families impacted by newborn screening so they can have a safe space to discuss their worries and concerns with Family Support Coach, Dr. Al.  He has dedicated 25 years to supporting families impacted by rare, neurological diseases.

    • Experienced counseling Psychologist
    • Dedicated 25 years
    • Safe space to discuss worries

Fill out the short screening form today to connect with Family Support Coach, Dr. Al, and to learn more about the support group.

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3-Hydroxy-3-Methylglutaric Aciduria
3-Methylcrotonyl-CoA Carboxylase Deficiency
Argininosuccinic Aciduria
Beta-Ketothiolase Deficiency
Biotinidase Deficiency
Carnitine Uptake Defect
Citrullinemia, Type I
Classic Galactosemia
Classic Phenylketonuria
Congenital Adrenal Hyperplasia
Critical Congenital Heart Disease
Cystic Fibrosis
Glutaric Acidemia, Type I
Hearing loss
Hemoglobinopathies
Holocarboxylase Synthetase Deficiency
Homocystinuria
Isovaleric Acidemia
Long-Chain L-3 Hydroxyacyl-CoA Dehydrogenase Deficiency
Maple Syrup Urine Disease
Medium-Chain Acyl-CoA Dehydrogenase Deficiency
Methylmalonic Acidemia (Cobalamin Disorders)
Methylmalonic Acidemia (Methymalonyl-CoA Mutase Deficiency)
Primary Congenital Hypothyroidism
Propionic Acidemia
S, Beta-Thalassemia
S, C Disease
Severe Combined Immunodeficiency
Sickle Cell Anemia
Trifunctional Protein Deficiency
Tyrosinemia, Type I
Very Long-Chain Acyl-CoA Dehydrogenase Deficiency
Adrenoleukodystrophy