Leadership Grants

Apply for a Leadership Grant today!

The Leukodystrophy Newborn Screening Action Network wants to support your advocacy. Apply for a Leadership Grant to get funds that will help kickstart your lobbying.

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We can grant up to $750 to cover costs associated with your advocacy.  If you’re lobbying, you might seek funding for:

  • Parking
  • Making copies of memos
  • Paying for a babysitter back at home
  • And more!

Get in contact with us here, and submit a letter to us at the LD NBS Action Network outlining your budget.  Tell us who you are, what these funds will be used for, and how we can support your advocacy efforts.  We look forward to hearing from you.

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    Subject

    Your Message

    3-Hydroxy-3-Methylglutaric Aciduria
    3-Methylcrotonyl-CoA Carboxylase Deficiency
    Argininosuccinic Aciduria
    Beta-Ketothiolase Deficiency
    Biotinidase Deficiency
    Carnitine Uptake Defect
    Citrullinemia, Type I
    Classic Galactosemia
    Classic Phenylketonuria
    Congenital Adrenal Hyperplasia
    Critical Congenital Heart Disease
    Cystic Fibrosis
    Glutaric Acidemia, Type I
    Hearing loss
    Hemoglobinopathies
    Holocarboxylase Synthetase Deficiency
    Homocystinuria
    Isovaleric Acidemia
    Long-Chain L-3 Hydroxyacyl-CoA Dehydrogenase Deficiency
    Maple Syrup Urine Disease
    Medium-Chain Acyl-CoA Dehydrogenase Deficiency
    Methylmalonic Acidemia (Cobalamin Disorders)
    Methylmalonic Acidemia (Methymalonyl-CoA Mutase Deficiency)
    Primary Congenital Hypothyroidism
    Propionic Acidemia
    S, Beta-Thalassemia
    S, C Disease
    Severe Combined Immunodeficiency
    Sickle Cell Anemia
    Trifunctional Protein Deficiency
    Tyrosinemia, Type I
    Very Long-Chain Acyl-CoA Dehydrogenase Deficiency
    Adrenoleukodystrophy