Just as newborn screening varies from state to state within the U.S., it also varies from country to country
Not all countries share the details of their programs publicly, so we have done our best to consult with families, in addition to researching medical journals and international websites, to ensure that we have an accurate picture of what NBS looks like around the world.

As of now, there are only a few countries considering screening for ALD, and none that screen for Krabbe or MLD. Argentina is moving forward and hopes to add ALD in 2021.
Our friends in the U.K. are doing incredible things and are in the process of helping change the entire NBS system there. They commissioned a study of the NBS programs of other countries that will be published later this year in an effort to restructure and improve their program. The U.K. does not readily accept research from the U.S. or other countries, so they are also working to publish studies on leukodystrophy treatments. You can read about their work here: https://www.archangel.org.uk/
Below is a chart with the most current information we collected. We will continue to update this information as we obtain data. If you have information to share, please contact info@ldnbs.org so that we can update our chart!
Worldwide NBS
- Number of Conditions Screened
- ALD Pending/Pilot
- Number of Conditions Screened
- ALD Pending/Pilot
Worldwide NBS Con.
- Number of Conditions Screened
- ALD Pending/Pilot
- Number of Conditions Screened
- ALD Pending/Pilot