Session 2 | MLD Newborn Screening: ScreenPlus, RUSP and Next Steps

Standards-of-Care-Meeting-Series

Session 2 | MLD Newborn Screening: ScreenPlus, RUSP and Next Steps

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Friday, March 5, 2021
10:00am – 12:00pm via Zoom

Speakers & Themes Include:

  • Dr. Melissa Wasserstein, Montefiore Medical Center — NY ScreenPlus pilot
  • Amy Gaviglio — NBS Counseling and Follow-up
  • Shanna Quimby, Cure MLD/Gavin Fighting for a Cure — NBS for Leukodystrophies
  • Dr. Marc Patterson, Mayo Clinic — Moderator

These panelists working hard on newborn screening (NBS) will provide an update on MLD NBS from three different perspectives. This will be a 30 minute presentation with an hour for moderated discussion. The presentations (~10 minutes each) will provide respective updates and offer a plan of action for next steps. The remaining hour of the meeting will be used to direct collaboration to advance agreed upon action items, and will include a suggested timeline and concrete next steps to coordinate work among advocates, clinicians, and researchers.

Date

Mar 05 2021
Expired!

Time

EST
10:00 am - 12:00 pm

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