Session 2 | MLD Newborn Screening: ScreenPlus, RUSP and Next Steps
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Friday, March 5, 2021
10:00am – 12:00pm via Zoom
Speakers & Themes Include:
- Dr. Melissa Wasserstein, Montefiore Medical Center — NY ScreenPlus pilot
- Amy Gaviglio — NBS Counseling and Follow-up
- Shanna Quimby, Cure MLD/Gavin Fighting for a Cure — NBS for Leukodystrophies
- Dr. Marc Patterson, Mayo Clinic — Moderator
These panelists working hard on newborn screening (NBS) will provide an update on MLD NBS from three different perspectives. This will be a 30 minute presentation with an hour for moderated discussion. The presentations (~10 minutes each) will provide respective updates and offer a plan of action for next steps. The remaining hour of the meeting will be used to direct collaboration to advance agreed upon action items, and will include a suggested timeline and concrete next steps to coordinate work among advocates, clinicians, and researchers.