Events for July 2024

Latest Past Events

LDNBS Bootcamp


The LDNBS Action Network is working with the EveryLife Foundation for Rare Diseases to host a newborn screening bootcamp about leukodystrophies and lysosomal storage disorders. This will be a 2 part event: the first session is Thursday, June 2nd and the second is Friday, June 3rd, from 1-2pm EST both days. The first day will […]