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Archive for Category: Support

HomeEvents for February 2023

Support and Care newborn Screening Families

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By LD

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Comments are off

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Family Support, Resources, Support

Support & Care with the LDNBS Action Network

Family Support Coach Support & Care Dr. Al

In News, Support

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By LD

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Family Support, Newly diagnosed, Support

Introducing: Family Support Coach, Dr. Al Freedman

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The Leukodystrophy Newborn Screening
Action Network is a coalition of leukodystrophy
patient advocates dedicated to championing
the cause of newborn screening for
leukodystrophies and lysosomal storage
disorders.

We want to build partnerships

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