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Archive for Category: Leukodystrophy

HomeLeukodystrophy

03 Jul

In Advocacy, Awareness, Leukodystrophy, Newborn Screening

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By Lesa Brackbill

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Advocacy, Awareness, Leukodystrophy, Newborn Screening

State Proclamation Project

The Leukodystrophy Newborn Screening
Action Network is a coalition of leukodystrophy
patient advocates dedicated to championing
the cause of newborn screening for
leukodystrophies and lysosomal storage
disorders.

We want to build partnerships