05 Nov In Advocacy, ALD, Awareness, Education, Krabbe, Leukodystrophy, MLD, Newborn Screening, Research / By Lesa Brackbill / No comments / Advocacy, ALD, Family Support, Krabbe, Leukodystrophy, MLD, Newborn Screening, Pennsylvania LDNBS Guide to Effective Newborn Screening Advocacy
04 Oct In Advocacy, Awareness, Education, Krabbe, Leukodystrophy, MLD, Newborn Screening, Newborn Screening Progress, News / By Lesa Brackbill / No comments / Advocacy, Krabbe, MLD, Newborn Screening, RUSP Newborn Screening Strategic Plans for MLD and Krabbe Released
04 Oct In Advocacy, Krabbe, Leukodystrophy, Newborn Screening, Newborn Screening Progress, RUSP Alignment / By Lesa Brackbill / Comments are off / Advocacy, Krabbe, Newborn Screening, RUSP Strategic Plan for Expanding Newborn Screening for Krabbe Disease
04 Oct In Advocacy, Leukodystrophy and Gene Therapy, MLD, Newborn Screening / By Lesa Brackbill / Comments are off / Advocacy, MLD, Newborn Screening, RUSP Strategic Plan for Expanding Newborn Screening for MLD
03 Jul In Advocacy, Awareness, Leukodystrophy, Newborn Screening / By Lesa Brackbill / Comments are off / Advocacy, Awareness, Leukodystrophy, Newborn Screening State Proclamation Project
24 Jan In Advocacy, MLD, Newborn Screening / By Lesa Brackbill / Comments are off / Advocacy, Leukodystrophy, MLD, Newborn Screening, Texas The MLD Story Project: Bryleigh (Texas)
06 Dec In Advocacy, Education, Newborn Screening / By Lesa Brackbill / No comments / Advocacy, Collaboration, Newborn Screening, Rare Diseases Collaboration in Newborn Screening Advocacy is Essential
01 Dec In Advocacy, Newborn Screening / By Lesa Brackbill / No comments / Advocacy, Leukodystrophy, Newborn Screening, Rapid Whole Genome Sequencing The Promise of Rapid Whole Genome Sequencing in Newborn Screening
29 Nov In Advocacy, Newborn Screening, Newborn Screening Progress / By Lesa Brackbill / No comments / Advocacy, Leukodystrophy, Newborn Screening What is a Newborn Screening Advisory Board?
29 Nov In Advocacy, Education, Krabbe, Newborn Screening Progress / By Lesa Brackbill / No comments / Advocacy, Education, Frequent Objections, Krabbe, Krabbe Disease, Newborn Screening Frequent Objections to Krabbe Disease Newborn Screening and How to Counter Them
