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Archive for Author: melanieR

HomeMelanie Rumbel

In Advocacy, MLD, Newborn Screening Progress

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By Melanie Rumbel

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Advocacy, MLD, Newborn Screening

Illinois Family Advocates for MLD Newborn Screening

LDNBS Bootcamp

In Leukodystrophy and Gene Therapy, News

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By Melanie Rumbel

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Virtual LDNBS Bootcamp!

LDNBS Welcome Video YouTube Thumbnail

In News, Videos

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By Melanie Rumbel

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Now Presenting: The LDNBS Action Network Welcome Video

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The Leukodystrophy Newborn Screening
Action Network is a coalition of leukodystrophy
patient advocates dedicated to championing
the cause of newborn screening for
leukodystrophies and lysosomal storage
disorders.

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