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Archive for Author: Admin LDNBS

HomeLD
ScreenPlus logo New York State Newborn Screening Pilot Program
07 Mar

In MLD, Newborn Screening Progress, News

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MLD, Newborn Screening, Newborn Screening Pilot, ScreenPlus

ScreenPlus Launches Newborn Screening Pilot Program in New York

ALD Newborn Screening Pilot Program in Buenos Aires, Argentina
14 Jan

In ALD, Newborn Screening Progress, News

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ALD, Newborn Screening, RUSP

ALD Newborn Screening Pilot in Buenos Aires, Argentina

Virginia Department of Health Logo - Krabbe Newborn Screening
21 Dec

In Krabbe, Newborn Screening Progress, News

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Virginia Votes Against Implementing Krabbe Newborn Screening

LDNBS-News-Pennsylvania-Passes-Bill-Krabbe-Newborn-Screening
13 Dec

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Krabbe, Newborn Screening, Pennsylvania

Featured

Pennsylvania Governor Signs Important Newborn Screening Legislation

Support and Care newborn Screening Families
30 Mar

In Support

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Family Support, Resources, Support

Support & Care with the LDNBS Action Network

Family Support Coach Support & Care Dr. Al
28 Mar

In News, Support

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Family Support, Newly diagnosed, Support

Introducing: Family Support Coach, Dr. Al Freedman

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The Leukodystrophy Newborn Screening
Action Network is a coalition of leukodystrophy
patient advocates dedicated to championing
the cause of newborn screening for
leukodystrophies and lysosomal storage
disorders.

We want to build partnerships

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