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Archive for Author: Admin LDNBS

HomeEvents for March 2023
ScreenPlus logo New York State Newborn Screening Pilot Program
07 Mar

In MLD, Newborn Screening Progress, News

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MLD, Newborn Screening, Newborn Screening Pilot, ScreenPlus

ScreenPlus Launches Newborn Screening Pilot Program in New York

ALD Newborn Screening Pilot Program in Buenos Aires, Argentina
14 Jan

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ALD, Newborn Screening, RUSP

ALD Newborn Screening Pilot in Buenos Aires, Argentina

Virginia Department of Health Logo - Krabbe Newborn Screening
21 Dec

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Virginia Votes Against Implementing Krabbe Newborn Screening

LDNBS-News-Pennsylvania-Passes-Bill-Krabbe-Newborn-Screening
13 Dec

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Krabbe, Newborn Screening, Pennsylvania

Pennsylvania Governor Signs Important Newborn Screening Legislation

Support and Care newborn Screening Families
30 Mar

In Support

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Family Support, Resources, Support

Support & Care with the LDNBS Action Network

Family Support Coach Support & Care Dr. Al
28 Mar

In News, Support

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Family Support, Newly diagnosed, Support

Introducing: Family Support Coach, Dr. Al Freedman

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The Leukodystrophy Newborn Screening
Action Network is a coalition of leukodystrophy
patient advocates dedicated to championing
the cause of newborn screening for
leukodystrophies and lysosomal storage
disorders.

We want to build partnerships

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