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Archive for Month: March

HomeEvents for March 2023

26 Mar

In News, Videos

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By Melanie Rumbel

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Now Presenting: The LDNBS Action Network Welcome Video

07 Mar

In MLD, Newborn Screening Progress, News

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By LD

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MLD, Newborn Screening, Newborn Screening Pilot, ScreenPlus

ScreenPlus Launches Newborn Screening Pilot Program in New York

The Leukodystrophy Newborn Screening
Action Network is a coalition of leukodystrophy
patient advocates dedicated to championing
the cause of newborn screening for
leukodystrophies and lysosomal storage
disorders.

We want to build partnerships