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Archive for Month: March

Home2016March

Support and Care newborn Screening Families

30 Mar

In Support

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By LD

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Comments are off

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Family Support, Resources, Support

Support & Care with the LDNBS Action Network

Family Support Coach Support & Care Dr. Al

28 Mar

In News, Support

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By LD

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No comments

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Family Support, Newly diagnosed, Support

Introducing: Family Support Coach, Dr. Al Freedman

The Leukodystrophy Newborn Screening
Action Network is a coalition of leukodystrophy
patient advocates dedicated to championing
the cause of newborn screening for
leukodystrophies and lysosomal storage
disorders.

We want to build partnerships